Measurement ScienceOur group is involved in the development, validation, and application of modern-measurement theory-based patient-reported outcome tools that inform research and clinical practice.
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Currently in-progress
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Creating and Optimizing Mindfulness Measures to Enhance and Normalize Clinical Evaluation (COMMENCE)
This is a 5-year R01 to improve the rigor, relevance, and reproducibility of mindfulness-based intervention research results by applying PROMIS and PROsetta Stone instrument development methodologies to the field of mindfulness measurement. |
Investigators
Completed
Urological Outcomes and Quality of Life
The objective of this longitudinal, observational study is to implement a serial data collection protocol to support the systematic assessment of important patient reported outcomes of individuals diagnosed with urological oncology conditions (prostate cancer and tumors/cancer of the testis, bladder or kidney). This prospective data collection will answer important questions related to the long term QOL trajectory of these patients and to establish the potential for linkages to the Northwestern Enterprise Data Warehouse and NMH Electronic Medical Record System.
The objective of this longitudinal, observational study is to implement a serial data collection protocol to support the systematic assessment of important patient reported outcomes of individuals diagnosed with urological oncology conditions (prostate cancer and tumors/cancer of the testis, bladder or kidney). This prospective data collection will answer important questions related to the long term QOL trajectory of these patients and to establish the potential for linkages to the Northwestern Enterprise Data Warehouse and NMH Electronic Medical Record System.
investigators
sponsor
Northwestern University Department of Urology
Patient Reported Outcomes Clarification, Equating & Standard Setting in Prostate Cancer (PROCESS-PC)
The purpose of this study is to employ standard setting methodologies and scale linking to provide a unified assessment system and set of interpretable tools that can help detect, clarify and inform intervention effects within and across therapies or patient populations and advance the discovery of important prostate cancer phenotypes.
The purpose of this study is to employ standard setting methodologies and scale linking to provide a unified assessment system and set of interpretable tools that can help detect, clarify and inform intervention effects within and across therapies or patient populations and advance the discovery of important prostate cancer phenotypes.
investigators
presentations & publications
Schalet B, Burns J, Victorson D. (2016). Creating a common metric between generic and cancer-specific measures: Linking PROMIS Anxiety to the Memorial Anxiety Scale for Prostate Cancer. Oral presentation at the ISOQOL 23rd Annual Conference, Copenhagen, Denmark.
Victorson DE, Schuette S, Schalet BD, Kundu SD, Hefand BT, Novakovic K, Sufrin N, McGuire M, Brendler C. (2016). Factors Affecting Quality of Life at Different Time Points since Treatment in a Sample of Men with Localized Prostate Cancer: The Unique Influence of Treatment Decision Making Satisfaction, Personality, and Sexual Functioning. J Urol. pii: S0022-5347(16)30548-1. doi: 10.1016/j.juro.2016.05.099. [Epub ahead of print]
Victorson D, Beaumont J, Mahadevan R, Gutierrez S, Schuette, Brady C, Ring M. (2016). Observing Acupuncture-Related Changes in Quality of Life using NIH PROMIS Computer Adaptive Tests: Preliminary Results from a Pragmatic Feasibility Trial with People Diagnosed with Cancer and other Medical Conditions. Journal of Alternative and Complementary Medicine, 22(10), 778-787.
Victorson DE, Schuette S, Schalet BD, Kundu SD, Hefand BT, Novakovic K, Sufrin N, McGuire M, Brendler C. (2016). Factors Affecting Quality of Life at Different Time Points since Treatment in a Sample of Men with Localized Prostate Cancer: The Unique Influence of Treatment Decision Making Satisfaction, Personality, and Sexual Functioning. J Urol. pii: S0022-5347(16)30548-1. doi: 10.1016/j.juro.2016.05.099. [Epub ahead of print]
Victorson D, Beaumont J, Mahadevan R, Gutierrez S, Schuette, Brady C, Ring M. (2016). Observing Acupuncture-Related Changes in Quality of Life using NIH PROMIS Computer Adaptive Tests: Preliminary Results from a Pragmatic Feasibility Trial with People Diagnosed with Cancer and other Medical Conditions. Journal of Alternative and Complementary Medicine, 22(10), 778-787.
sponsor
Robert H. Lurie Comprehensive Cancer Center at Northwestern University
